_The Public's Share of Medical Research_ By Fazlur Rahman. A 42-year-old woman with ovarian cancer has been in and out of the hospital for months. Her course is complicated by anemeia, which requires frequent blood transfusions. But now she is experiencing debilitating side effects from the repeated use of blood. She does not need to go through these ordeals. Erythropoietin (EPO), a product of genetic engineering, could treat her anemia. In the past, after taking the EPO for a few weeks, she improved. But then she had to stop. Her health insurer refused to cover her EPO treatment, and because of its high cost she could not afford it. As a school teacher, she has too much money to qualify for financial assistance but too little to pay for her therapy. Like many other drugs created through genetic engineering, EPO is far too expensive. The manufacturers understandably claim they are entitled to a fair return on their investments. But their notion of what is fair is open to debate. Basic biomedical research has long been heavily subsidized by United States taxpayers. The Federal Government spends billions for the National Institutes of Health and gives numerous grants to universities to further research. High-tech pharmaceuticals owe their origin largely to these investments and to Government scientists. The public has earned the right to buys the products at a reasonable price. Already, about a dozen DNA-technology drugs are in the market; 21 other genetically engineered medicines are awaiting F.D.A. approval. ore than 85 others --- treatments for various ailments including cancer, AIDS, Alzheimer's disease, strokes and blood clots -- are undergoing human trials. Genetically engineered compounds are not the only ones that are high-priced. One monthly injection of carboplatinum, an anticancer agent, may cost $1,000; and a single capsule of VP-16, another antitumor medication, costs $40. And they have to be taken for months to achieve any benefit. Surely, the $36 billion pharmaceutical industry has room for easing prices on some products. As a practicing physician, I wish I had better treatments for cancer patients. But what good is a superdrug if its cost is out of reach of our patients? The Human Genome Project has embarked on an effort to map all human genes. At a cost of $3 billion over 15 yeas, this effort could exceed in scope the Apollo moon-landing program. Year from now, when it brings cures, we should remember that our citizens funded the project. ------------------------------------------------ New York Times, Sunday, April 26, 1992, page F13 ------------------------------------------------ ...and of course it is not just the Human Genome Project in the future but in currently existing medicine that there is the public-subsidy, private-profit syndrome, as Fazlur points out. Z magazine (especially Michael Albert) has more on critiques of Capitalism, about which a discussion with more examples in gen.socialism would be nice some day.